Update

Hey everyone, thank you so much for the prayers for Jesse… he is totally fine now! We did end up staying in the hospital for 5 days. It took him a long time to get off of the extra oxygen, but the day I took Levi with me to Vandy and stayed all day, is the day that Jesse went from having to have the oxygen at all times (like it would come off for a few seconds and he would start going down!) to being totally fine without it. We came home on asthma medicine to prevent incidents like that one in the future. We really don’t like having him on it but until we can find a better alternative, we will continue to give it to him…
We left the hospital on Tuesday and then had to go to the pediatrician the very next day to make sure Jesse’s lungs still sounded good, thankfully they did and his ear infections were gone as well. Levi’s ear looked much better but not 100% just yet.
We are needing wisdom and prayer to decide if we want to stay with our pediatrician or find a new one. Do you remember when we first came home from the hospital after Levi’s big surgery in August? The Pediatrician on call was freaking out because his feeding tube had come out and I didn’t let the ER people re-admit him to try to put it back in after two failed attempts? Well, the same lady came and did rounds at Vanderbilt and after listening to him once decided that nobody there could wean him off of the oxygen or space out his breathing treatments for two days. I. Was. Furious. We couldn’t go home until he was off the oxygen and on every 4 hours of breathing treatments. We had already been there for 4 days and he was doing so great. Everyone disagreed with her(respiratory therapist, nurses, resident and fellow), but she made it clear that she had the authority to decide. After talking to our pediatrician we did get that resolved and left the next morning. This Doctor is the owner of the practice and I’m sure she is a smart women. I read her profile and it sounds like she is a great Christian as well. But we have just had the worst experiences with her! The two times that we have had to deal with her… well… they have just been horrible experiences. SO, if the boys ever get sick on a holiday or if they are at Vanderbilt on a Monday, she will be there… Anyway, please pray for God to give us wisdom on whether to stay there or find someplace else, Brian and I love the boys pediatrician but don’t know if we love her enough to risk having to deal with the other Doctor again.
So, tomorrow Levi his having yet another scope. Gosh, I don’t even know how many he’s had since his big surgery! Too many for sure. We are hoping and praying for a miracle, that his airway will look clear and not irritated, the swelling completely gone and that the Doctor will see a nice sturdy and strong structure so that he can take his trache out with confidence and his airway will never collapse. Not too much to ask right?
One week after tomorrow we leave for Mexico. To say that I am excited would be an understatement! This has all been very exhausting and I just need to breathe in air from my beautiful ranch… no doctor appointments, no phone, no crazy holiday traffic… just surrounded by my crazy amazing family. Enjoying the different community Bible studies and delicious food… right now it sounds like a dream!
Love you all and will let you know how Levi’s airway and esophagus look…