Wednesday, August 24, 2011

Next steps

Okay, today Levi passed his swallow test, thank you Lord!!! He still isn't really drinking. It's a combination of fear, pain and just weirdness that keeps him from wanting to. But he can and we are thankful. The doctor came by and was explaining how because there is a stent in his swollen airway, there are still several things that can go wrong. As the swelling goes down, it is not uncommon for kids to start aspirating (food going into lungs when swallowing). The stent will stay for two weeks, it's in his new airway, so he still can not breathe without his trach. Even after they pull that out, there still may have to be several other little surgerys to remove scaring from the surgery. It probably will be months before he is trach free. But, when the stent comes out, things should be much better. It's a slow process, hopefully the hardest part is behind us... We're pretty tired, all of us!
Jesse has a infection in his ear and is still couphing some. He wants us all home but is doing so good with all the craziness! Levi needs to start eating for us to go home without a tube in his nose. He also needs to sit up, he's moving in his bed better, but he will not sit up. He won't speak a single word eather. I miss my healthy, energetic, smart Alec boy so much! Brian and I are good, tired of constantly rotating between hospital and home, jesse and Levi... But God is good!

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